#I love you i need you i like you i miss you korean song how to#
I asked some other mothers around the world who do know something about how to live: how do they help their children navigate disability in a world that’s not always welcoming? Here’s what they told me: Jean, mother of Robert I don’t think they will end up knowing how to live.” I’m sorry for people who are scared of suffering. And it’s much more wonderful than they can imagine. “But it’s hard in a different way than people might expect. I think of my own mom, Mengia, who loved Duane so fiercely and proudly, who still gazes at his photo every day ten years after his death with a look that says, “I got to be his mother.” She’s an honorary grandmother to Rob too, and an advocate for the disability community in our neighborhood. But much as I loved my brother, sistering is not mothering. I knew how to sister an amazing brother for thirty-one years longer than the doctors thought he’d be around. I don’t know what that’s like, to mother this beautiful boy through every hour of every day. Robert has cerebral palsy, and he has weathered multiple complications in his seven years. Sometimes you’ve prayed all the prayers you can think of, and still your child is in fragile condition in the ICU.
Sometimes you can’t party yourself out of dread and uncertainty. We had the campfire, we had the laughs, but (and I daresay Reuel knew this was going to happen too) we also had some tears traitorously raising the water levels of our gin and tonics. “On it!” I zapped back – no hardship hanging out with my friend. Can you get her over for a campfire or something? She needs a good laugh.” The text was from Reuel, in the hospital for the fourth time this year with their son Robert.
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